I’ve been insanely busy over the last month, working on an exciting project that has taken precedence over any of my other writing projects.
A couple of years ago on Chicago’s local NPR affiliate, I heard an interview with a woman who had developed something called The Drinkable Book. The pages of the book are antimicrobial filters that convert water contaminated with feces and other ickiness to clean, safe, drinkable water. Each page can filter enough water for one person for a month! Extremely cool idea, right? Continue reading
When you have a child with special needs that take up a lot of your time and attention, what about the other children?
I only have two children: Lei, my older child, the one with lots of appointments, therapies, quirks and challenges, and my younger child. My more or less neurotypical child, the one whose challenges are more minor. The other child. Continue reading
At Lei’s audiology appointment on Tuesday, the audiologist gently asked how we were doing. She listened to Lei about how she has been feeling, and thoughtfully absorbed the suggestions for programming we had come up with in our meeting with the d/hh team at school.
Finally it was time to take the plunge. I handed over the left processor and the audiologist connected it to her computer on one end and to Lei’s head on the other. Continue reading
During Lei’s days off last week, I tried having her wear her right processor again, and surprisingly she was able to hear decently through it. Over the last week the cutting-in-and-out problem seems to have resolved completely. Lei can hear again!
She still talked about being homeschooled, however, and I asked her how she planned to stay in touch with her new friends at school. “I’ll chat with them online,” she breezed.
She had it all worked out. But on Tuesday when Lei, her dad and I met at midday with the school case manager, audiologist and hearing itinerant, Lei did a 180.
“I talked with my two good friends here and they said they wouldn’t be friends with me if I quit going to Madero.” She grinned. “So I’m staying!”
Let’s hear it for positive peer pressure! Continue reading
I keep wondering if this is what we’ll someday call a breakdown.
Someday maybe we will tell this story by saying that Lei kept having really hard years at school, that we kept trying new things, new interventions, new schools, but we couldn’t seem to find the right fit. And then we’ll talk about how we were so hopeful that attending her dad’s school would give her the security, academic challenges and sense of belonging she lacked. And how, just after she started there, she suffered a breakdown. Continue reading
Last night Lei and I happened upon Elahe Bos’ blog, Plant Love Grow. We were loving the artwork and the creative approaches to social emotional development when we stumbled on The tiger in my chest, a printable story about anger that includes calming exercises to avoid losing control. As we read it, I reflected that we can’t just keep the tiger caged up all the time. So I asked Lei about her anger, and what she wants to do about it.
When I picked the color for Lei’s first hearing aids, it was a major philosophical decision: hide or flaunt?
Did I want her to blend in or stand out? Did I hope for her to be mistaken for normal? Did I dream for her deafness to go unnoticed or celebrated?
What do you think I chose? Her first hearing aids were bright pink.
Why did I think about it so deeply? My mom.