For those who are new here, the story of Lei’s diagnosis and how we got started on this road. How did your journey begin?
One day when my daughter, Lei, was 16 months old, I found myself chatting with another mom and her daughter, who was within a month of Lei’s age. The girls were playing and this other mom and I were making the kind of small talk that moms of young children can make even if they don’t know each other well.
When the other little girl began to fuss, her mom asked her, “Are you hungry?”
The girl nodded.
My jaw dropped.
Lei had never ever done that. It was a great day when she pointed at something. Although she clung to me so much we called her “monkey baby,” she spoke zero words, didn’t nod, shake her head, answer to her name or follow simple commands. She didn’t consistently make eye contact and had certainly never answered a question.
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